Washington, D. Clinic Information: Adult and pediatric patients seen with localized and systemic scleroderma and other autoimmune conditions. Research Information: Sabrina Elliott, , se georgetown. The Scleroderma Foundation is a qualified national nonprofit operating under c 3 status.
Virginia D. Advances in Pulmonary Hypertension 1 April ; 7 2 : For Virginia D. In this era before any treatments were approved, before the landmark studies that would revolutionize the treatment of the disease, rheumatologists remained on the fringes of PH research. Although rheumatologists generally do not participate in the clinical trials in PH, largely because of the relatively smaller number of patients in their care who can be evaluated, efforts by Dr Steen and her colleagues over more than 20 years have helped research the connection between scleroderma and pulmonary arterial hypertension. This has led to a tremendously improved understanding of the natural history of PH in scleroderma, the risk factors for predicting PH in patients with this coexisting disease, and the response to the newer therapies approved within the last 5 to 6 years.
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Steen was profiled by PHA Online University and she has been involved with more than 50 published studies and articles and many patient organization activities. It is an excellent center for adult systemic scleroderma patients who have lung involvement, such as pulmonary hypertension. Scleroderma often takes many years to diagnose because of insidious onset, vague initial symptoms, and low physician and public awareness.